Patient & Family Advisory Council (PFAC)
The Caswell Diabetes Institute Patient and Family Advisory Council (CDI PFAC) includes people living with diabetes or family members that care for someone with diabetes. These individuals with different backgrounds, expertise and experiences provide valuable feedback to help ensure that CDI’s goals and strategies are closely aligned with the goals of people living with and affected by diabetes, obesity and other metabolic conditions. Launched in May 2022, the CDI PFAC has offered expertise and experience on topics that are shaping the development of programs, services and policies, including:
- Work with the American Diabetes Association’s Continuous Glucose Monitor (CGM) Equity Initiative, sharing insights to not only underscore how CGM provides significant, life-changing benefits for diabetes management, but also the variation in access to these critical devices. This input has helped inform advocacy efforts for Medicaid coverage of CGMs for those who need it as well as the overly restrictive barriers to the technology, with a revised policy proposal due out of the Michigan Department of Health and Human Services (MDHHS) in March 2023.
- Providing essential early input to the new CDI Diabetes Mental Health program, regarding the mental health and social needs of people with diabetes. This critical input has not only informed the next steps of this program but is informing larger projects that examine the overlooked area of life stressors that specifically impact people living with diabetes.
- Exploring the design of Diabetes/Obesity Peer Mentoring programs, the transition of care from pediatric to adult services, improving adult inpatient diabetes education and working with CDI to develop patient/community facing content and updates.
We are grateful for the commitment of our patients and families and look forward to continued growth and partnership as we expand our reach within the population of those we serve and the broader community.
Internal Advisory Board
John Ayanian, MD, MPP
Timothy Blackwell, MD
Charles Burant, MD, PhD
Greg Cartee, PhD
Roger Cone, PhD
Marie DeWerff
Vicki Ellingrod, PharmD, FCCP, FACNP
Lori Isom, PhD
Karl Jepsen, PhD
Vesa Kaartinen, PhD
Steve Kunkel, PhD
Paul Lee, MD, JD
Julie Lumeng, MD
Donna Martin, MD, PhD
Dan Michele, PhD
Jeffrey Morenoff, PhD
Karen Petersen, DSc
Lonnie Shea, PhD
Scientific Advisory Board
E. Dale Abel, MD, PhD
David Geffen School of Medicine and UCLA Health
William S. Adams Distinguished Professor of Medicine
Chair and Department Executive Officer, Department of Internal Medicine
Director, Division of Endocrinology & Metabolism, Department of Internal Medicine
Mark Atkinson, PhD
University of Florida American Diabetes Association Eminent Scholar for Diabetes Research
Jeffrey Keene Family Professor
Professor, Departments of Pathology, Immunology and Laboratory Medicine/Pediatrics
Director, University of Florida Diabetes Institute
Professor, Departments of Pathology and Pediatrics
John Buse, MD, PhD
University of North Carolina School of Medicine
Verne S. Caviness Distinguished Professor
Chief, Division of Endocrinology
Director, Diabetes Center
Director, North Carolina Translational and Clinical Sciences Institute
Senior Associate Dean for Clinical Research
Tamara (Mara) Darsow, PhD
Novo Nordisk Corporate Vice President of Commercial Planning
Sanjoy Dutta, PhD
Breakthrough T1D (Formerly JDRF) Chief Scientific Officer
Robert Gabbay, MD, PhD
American Diabetes Association Chief Science & Medical Office
Ruth Gimeno, PhD
Eli Lilly and Company Vice President, Diabetes Research and Clinical Investigation
Sherita Golden, MD, MHS
John Hopkins Medicine
Hugh P. McCormick Family Professor of Endocrinology and Metabolism
Vice President and Chief Diversity Officer
Carla Greenbaum, MD
Benaroya Research Institute
Director, Center for Interventional Immunology
Director, Diabetes Research Program
George King, MD
Joslin Diabetes Center (Harvard)
Director of Research
Senior Vice President and Head of the Section on Vascular Cell Biology
Professor of Medicine and Ophthalmology, Harvard Medical School
Director, Asian American Diabetes Initiative
Rob Lash, MD
Endocrine Society Chief Medical Officer
Monica Peek, MD, MPH
University of Chicago
Ellen H. Block Professor for Health Justice of Medicine
Associate Director, Chicago Center for Diabetes Translational Research
Marlon Pragnell, PhD
American Diabetes Association (ADA) Vice President, Research & Science
Christopher Rhodes, PhD
AstraZeneca
Chief Scientist, Research and Early Development, Cardiovascular, Renal and Metabolism
BioPharmaceuticals R&D
Chair of AstraZeneca’s Postdoc Programme
Elizabeth Seaquist, MD
University of Minnesota Medical School
Nesbitt Chair and Head, Department of Medicine
Associate Dean, Medical Specialties and Primary Care
Professor of Medicine, Diabetes, Endocrinology and Metabolism
Faculty, Program in Integrative Biology and Physiology
PhD Co-Director, Institute for Diabetes, Obesity, and Metabolism
Associate Dean, Medical Specialties and Primary Care
Lori Sussel, PhD
University of Colorado
Professor of Pediatrics and Cell & Developmental Biology
Sissel and Findlow Stem Cell Chair, Barbara Davis Center for Diabetes
Associate Vice Chancellor for Basic Science Research
Marianne Udow-Phillips
University of Michigan School of Public Health/Public Policy
Head of Public Health for Rewind
Senior Advisor, Center for Health and Research Transformation
Principal of MuConsulting
Lecturer, University of Michigan Gerald R. Ford School of Public Policy